Tag: disability-advocate
-
Strength training with Friedreichs Ataxia: Adaptive workouts at Iron Tribe Fitness
Living with Friedreich’s Ataxia, strength training has become my most important tool for staying independent. At Iron Tribe Auburn, I’ve gained muscle, improved stability, and discovered how adaptive workouts can slow FA progression. Here’s how lifting weights with a disability transformed my health, confidence, and daily life.
-
Empowering Lives Through Travel: The Being Positioned Experience
This post highlights a six-day San Francisco trip funded by Being Positioned, a nonprofit supporting people with rare diseases. It details the application process, trip itinerary, accessibility insights, and the personal impact of traveling while living with Friedreich’s ataxia.
-
Becoming An [Adapted] Athlete Again
![Becoming An [Adapted] Athlete Again](https://knowinnoah.blog/wp-content/uploads/2025/06/img_9612.jpeg?w=1024)
In fall of 2024, I began playing a new sport for Auburn University: power soccer. This June, we won the National Tournament in Fort Wayne, Indiana. Read about my journey becoming an athlete again and how I discovered this new sport.
-
The Cause for Community: Getting Connected With My FAm
Making connections in the patient community has been the best part of my life with Friedreichs Ataxia. Here’s the journey of how I got plugged in and what that has been like for me.
-
How Clinical Trials Transformed My Life with Friedreichs Ataxia
I don’t know what my life would look like if I hadn’t nonchalantly agreed to join my first clinical trial at age 17, but I sure wouldn’t want to find out. Joining a clinical trial has brought some of the biggest blessings into my life and helped completely flip my outlook on life with FA.…
-
Mental health & FA: Not the same
As I discussed in my last blog post, the hardest part of living with Friedreichs Ataxia for me is the mental health struggles I’ve dealt with that stem from grief of a life that isn’t at all what I imagined it’d be. Well, allow me to respond to that. As I wrote previously, I believe…
-
‘No manual for that’: Mental health & FA
One of the things I want people to know about life with Friedreichs ataxia is how prevalent the struggle with mental health is. Anxiety, depression and hopelessness can often put you in a cloud, but I also want to share a message of hope that waits on the other side of that cloud.
-
The power in vulnerability
Sometimes, when I deal with a new symptom of FA or one that has progressed and caused a new issue, it makes me feel so isolated. No one at my age deals with these problems. What is wrong with me? The reality is that the world is full of pain and suffering, but it’s rarely…
Knowin' Noah 