Tag: writing
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Join Patients Like Me: A Community for FA Support
I’m excited to partner with Patients Like Me to help grow the Friedreich’s ataxia community through connection, education, and shared experiences. Their free platform offers trusted resources, peer support, and research updates, creating a welcoming space where patients and caregivers can learn, connect, and thrive together.
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Reflecting On My College Journey with Friedreichs Ataxia
College is intimidating, especially when you’re navigating it with a progressive disability. After being diagnosed with Friedreichs Ataxia at 16, I entered college unsure of what my future would look like. What I didn’t expect was how those years would force me to grow, find my voice and advocate not just for myself, but for…
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DON’T WAIT TO CELEBRATE
Life with FA is challenging, but it’s taught me to find joy even in the waiting. Inspired by a book called Suffer Strong, I’ve learned that celebration isn’t about perfect circumstances—it’s about perspective.
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The Cause for Community: Getting Connected With My FAm
Making connections in the patient community has been the best part of my life with Friedreichs Ataxia. Here’s the journey of how I got plugged in and what that has been like for me.
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What doesn’t kill you makes you stronger
I genuinely would not be the strong man I am today without the years of 8th grade through high school, but I would never wish them on my worst enemy. It was a period where my FA symptoms onset, but no one else knew what was happening and neither did I.
Knowin' Noah 