Tag: accessibility
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Reflecting On My College Journey with Friedreichs Ataxia
College is intimidating, especially when you’re navigating it with a progressive disability. After being diagnosed with Friedreichs Ataxia at 16, I entered college unsure of what my future would look like. What I didn’t expect was how those years would force me to grow, find my voice and advocate not just for myself, but for…
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Strength training with Friedreichs Ataxia: Adaptive workouts at Iron Tribe Fitness
Living with Friedreich’s Ataxia, strength training has become my most important tool for staying independent. At Iron Tribe Auburn, I’ve gained muscle, improved stability, and discovered how adaptive workouts can slow FA progression. Here’s how lifting weights with a disability transformed my health, confidence, and daily life.
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Empowering Lives Through Travel: The Being Positioned Experience
This post highlights a six-day San Francisco trip funded by Being Positioned, a nonprofit supporting people with rare diseases. It details the application process, trip itinerary, accessibility insights, and the personal impact of traveling while living with Friedreich’s ataxia.
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Accessible Air Travel… Coming Soon?!
I traveled to Philadelphia for the FARA symposium at CHOP in October 2024, where I tested Delta Flight Products’ wheelchair seat prototype, met a Delta Flight Product representative and partnered with Biogen to create a video to promote the design on social media. View the video to see how it works and read my thoughts…
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Accessibility doesn’t mean convenience
This past December, I was preparing to cross the gym to get to my apartment room. Only one problem – I tugged on the handle and it didn’t open. I looked up to see the sign on the door read “gym closed due to renovations.” That left the only route to my room across the…
Knowin' Noah 