As of this week, I’m excited to announce my partnership with an organization called PatientsLikeMe! I am joining the community with the platform of fitness and staying active, and this is also an avenue for me to share my blogs with an audience I try to reach!
Patients Like Me has started an online FA community (for people with FA and their caregivers only) that allows people to connect with other FA patients/caregivers, find quality tips and information from member-generated content, stay up to date on clinical research, share your story at your own comfort level and more! They will also hold monthly events virtually, one of which I’ll be a part of on July 23.
It is really exciting to see organizations such as Patients Like Me valuing the FA community and helping us thrive. They are organizing quality, trustworthy information all into one source, making it easy to learn from each other, share our own stories and help us redefine what it means to have & live with FA. It’s a really powerful experience to connect with others who understand you and your story so well.
I highly recommend joining this community. It is free to join, and whatever you are able/want to contribute is highly appreciated. FA family, let’s pour into this amazing resource and make it a gem!
About PatientsLikeMe: We believe in the power of community to improve the lived experience of patients managing complex health conditions. Our purpose is to create a trusted digital platform that empowers patients to navigate their health journeys together through peer support, personalized health insights, tailored digital health services and patient-friendly clinical education.
Knowin' Noah 
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