Tag: writing
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Reflecting On My College Journey with Friedreichs Ataxia
College is intimidating, especially when you’re navigating it with a progressive disability. After being diagnosed with Friedreichs Ataxia at 16, I entered college unsure of what my future would look like. What I didn’t expect was how those years would force me to grow, find my voice and advocate not just for myself, but for…
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DON’T WAIT TO CELEBRATE
Life with FA is challenging, but it’s taught me to find joy even in the waiting. Inspired by a book called Suffer Strong, I’ve learned that celebration isn’t about perfect circumstances—it’s about perspective.
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The Cause for Community: Getting Connected With My FAm
Making connections in the patient community has been the best part of my life with Friedreichs Ataxia. Here’s the journey of how I got plugged in and what that has been like for me.
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What doesn’t kill you makes you stronger
I genuinely would not be the strong man I am today without the years of 8th grade through high school, but I would never wish them on my worst enemy. It was a period where my FA symptoms onset, but no one else knew what was happening and neither did I.
Knowin' Noah 