Tag: life

• DON’T WAIT TO CELEBRATE

  Life with FA is challenging, but it’s taught me to find joy even in the waiting. Inspired by a book called Suffer Strong, I’ve learned that celebration isn’t about perfect circumstances—it’s about perspective.

  Noah Griffith

  September 14, 2025

  Uncategorized

  ataxia, disability, friedreichs-ataxia, hope, life, livingwithataxia, love, mental-health, mindfulness, perspective, rare-disease, writing

• The Cause for Community: Getting Connected With My FAm

  Making connections in the patient community has been the best part of my life with Friedreichs Ataxia. Here’s the journey of how I got plugged in and what that has been like for me.

  Noah Griffith

  June 13, 2025

  Uncategorized

  ataxia, disability, disability-advocate, friedreichs-ataxia, friedreichsataxia, health, life, livingwithataxia, mental-health, rare-disease, writing

• The Path to Purpose: Rare Disease Week 2025

  Advocating at Rare Disease Week in Washington D.C. showed me how my weaknesses can be used to strengthen others, which I believe is key to living a purpose-filled life.

  Noah Griffith

  March 18, 2025

  Uncategorized

  advocacy, friedreichs-ataxia, health, life, mental-health, purpose, rare-disease, rare-disease-day