Tag: hope
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DON’T WAIT TO CELEBRATE
Life with FA is challenging, but it’s taught me to find joy even in the waiting. Inspired by a book called Suffer Strong, I’ve learned that celebration isn’t about perfect circumstances—it’s about perspective.
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How Clinical Trials Transformed My Life with Friedreichs Ataxia
I don’t know what my life would look like if I hadn’t nonchalantly agreed to join my first clinical trial at age 17, but I sure wouldn’t want to find out. Joining a clinical trial has brought some of the biggest blessings into my life and helped completely flip my outlook on life with FA.…
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Mental health & FA: Not the same
As I discussed in my last blog post, the hardest part of living with Friedreichs Ataxia for me is the mental health struggles I’ve dealt with that stem from grief of a life that isn’t at all what I imagined it’d be. Well, allow me to respond to that. As I wrote previously, I believe…
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‘No manual for that’: Mental health & FA
One of the things I want people to know about life with Friedreichs ataxia is how prevalent the struggle with mental health is. Anxiety, depression and hopelessness can often put you in a cloud, but I also want to share a message of hope that waits on the other side of that cloud.
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30,000 perspective
Living with FA, my journey is very rarely the typical one. The battle I have is to make the most of the road I’m on, or I can lose all of while comparing myself to the path others are on. A conversation I had with a cloud on a recent flight I was on put…
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The power in vulnerability
Sometimes, when I deal with a new symptom of FA or one that has progressed and caused a new issue, it makes me feel so isolated. No one at my age deals with these problems. What is wrong with me? The reality is that the world is full of pain and suffering, but it’s rarely…
Knowin' Noah 