Tag: travel

• Empowering Lives Through Travel: The Being Positioned Experience

  This post highlights a six-day San Francisco trip funded by Being Positioned, a nonprofit supporting people with rare diseases. It details the application process, trip itinerary, accessibility insights, and the personal impact of traveling while living with Friedreich’s ataxia.

  Noah Griffith

  August 18, 2025

  Uncategorized

  accessibility, adventure, being-positioned, california, disability, disability-advocate, friedreichs-ataxia, livingwithataxia, nonprofit, rare-disease, road-trip, san-francisco, travel

• A California Adventure

  

  I met up with three other guys with Friedreichs ataxia (FA) – the rare, neuromuscular disease I live with – for a trip to Orange County, California last month. My highlights of the trip might not be what people expect, but it was significant in my life and for my growth.

  Noah Griffith

  June 12, 2024

  Uncategorized

  community, friendship, travel

• Why I Ride

  I never did learn to ride a bike as a kid. That’s why my first ride on a recumbent trike (pictured above) at RideAtaxia Orlando in 2019 was such a big deal. It looked funky – nothing like a real bike. It seemed like something someone who couldn’t ride a bike rode so they could…

  Noah Griffith

  March 8, 2024

  Uncategorized

  adaptive-cycling, advocate, ataxia, bicycle, bike, biking, catrike, cycling, freidriechs-ataxia, rare-disease, travel