Tag: rare-disease-day
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The Path to Purpose: Rare Disease Week 2025
Advocating at Rare Disease Week in Washington D.C. showed me how my weaknesses can be used to strengthen others, which I believe is key to living a purpose-filled life.
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RARE IS REAL
Rare Disease Day is approaching, but what does that have to do with you? February is national rare disease month, and rare disease day lands on the final day of February each year. Being leap year, this year it’s on the rarest day in existence: February 29. This month, more than ever, I have realized…
