Tag: community
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A California Adventure
I met up with three other guys with Friedreichs ataxia (FA) – the rare, neuromuscular disease I live with – for a trip to Orange County, California last month. My highlights of the trip might not be what people expect, but it was significant in my life and for my growth.
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RARE IS REAL
Rare Disease Day is approaching, but what does that have to do with you? February is national rare disease month, and rare disease day lands on the final day of February each year. Being leap year, this year it’s on the rarest day in existence: February 29. This month, more than ever, I have realized…
Knowin' Noah 