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Living with Friedreich’s Ataxia, strength training has become my most important tool for staying independent. At Iron Tribe Auburn, I’ve gained muscle, improved stability, and discovered how adaptive workouts can slow FA progression. Here’s how lifting weights with a disability transformed my health, confidence, and daily life.
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Life with FA is challenging, but it’s taught me to find joy even in the waiting. Inspired by a book called Suffer Strong, I’ve learned that celebration isn’t about perfect circumstances—it’s about perspective.
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This post highlights a six-day San Francisco trip funded by Being Positioned, a nonprofit supporting people with rare diseases. It details the application process, trip itinerary, accessibility insights, and the personal impact of traveling while living with Friedreich’s ataxia.
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In fall of 2024, I began playing a new sport for Auburn University: power soccer. This June, we won the National Tournament in Fort Wayne, Indiana. Read about my journey becoming an athlete again and how I discovered this new sport.
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Making connections in the patient community has been the best part of my life with Friedreichs Ataxia. Here’s the journey of how I got plugged in and what that has been like for me.
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I don’t know what my life would look like if I hadn’t nonchalantly agreed to join my first clinical trial at age 17, but I sure wouldn’t want to find out. Joining a clinical trial has brought some of the biggest blessings into my life and helped completely flip my outlook on life with FA.…
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Advocating at Rare Disease Week in Washington D.C. showed me how my weaknesses can be used to strengthen others, which I believe is key to living a purpose-filled life.
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I traveled to Philadelphia for the FARA symposium at CHOP in October 2024, where I tested Delta Flight Products’ wheelchair seat prototype, met a Delta Flight Product representative and partnered with Biogen to create a video to promote the design on social media. View the video to see how it works and read my thoughts…
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As I discussed in my last blog post, the hardest part of living with Friedreichs Ataxia for me is the mental health struggles I’ve dealt with that stem from grief of a life that isn’t at all what I imagined it’d be. Well, allow me to respond to that. As I wrote previously, I believe
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One of the things I want people to know about life with Friedreichs ataxia is how prevalent the struggle with mental health is. Anxiety, depression and hopelessness can often put you in a cloud, but I also want to share a message of hope that waits on the other side of that cloud.
Knowin' Noah 